The Silver Lining: Just a few pictures I wanted to share..

Friday, February 5, 2010

Just a few pictures I wanted to share..

This is Allison in her shower cap. It's the cutest thing ever. I started making her wear it so I didn't have to wash her hair every night. She gets so excited in the tub that her splashes make a big mess!

Alli got a new booster seat a few weeks ago. This one is rated up to 50 lbs with the chest harness which makes me happy. I wasn't ready to let her go to just a seat belt. She is way to wiggly!

Today was picture day at school. She wore her hair in pig tails and a pretty flowered shirt I bought her with her Christmas gift cards. They do such a good job with her every year that her pictures turn out great. Here is last year's...

I am really hopeful that this year's turns out as good! I have to wait until the middle of March for them to be delivered, and since I spent $50 on them I'm hoping that they are worth it!

3 comments:

ErinFebruary 6, 2010 at 6:20 AM
Hehe, I do the same thing, wear a shower cap when I don't feel like washing my hair.

Cute pics.
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KellyFebruary 6, 2010 at 6:31 AM
Such a BEAUTY! What type of car seat is that? My Rett Angel is 4 and only 30 lbs right now..the one I bought is not working out as great as I thought it would.
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RobinFebruary 6, 2010 at 11:44 AM
Kelly, it is a Safety First brand All in One. I got it at Target. If you want the model number I could probably look it up for you.
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Our daughter Allison

has Rett Syndrome, a rare neurological disorder that has no cure (yet). Rett Syndrome impacts almost every part of our lives and affects approximately 1 in 20,000 females.

Rett Sydrome as been described as the most physically disabling of the autism spectrum disorders. Our daughter, like others with Rett, can not speak. In some ways, this lack of communication is often her biggest disability. Many girls with also Rett can not use their hands, walk, are plagued by seizures and have digestive, cardiac, and orthopedic issues.

In this blog we hope to share our experience with Rett Syndrome- the good and the bad. Our hope is that one day Rett Syndrome will be cured. In the meantime we will continue to focus on the good things- our silver lining.